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Strange symptoms rapidly worsening -back pain, vibrating legs and body
Brain & Nervous System | Last Active: Sep 20, 2023 | Replies (33)Comment receiving replies
Hi,
I am in my 20s and have started having symptoms that have been worsening. The symptoms include hot flashes with profuse episodes of facial sweating, waxing and waning neck and back pain (which has now progressed to always being in pain in some area of my neck/spine), muscle spasms in my pelvic area and legs, fasciculation in legs, vibrating sensation in back and both legs (sometimes I can feel the muscles in my thighs and physically feel them moving/tremoring very very fast). My legs have recently started vibrating/tremoring/shaking when I'm standing up (I am very scared). The pain is usually dull/boring pain along with nerve like pain like sharp pains. It sometimes feels like my entire spine/spinal cord is being pulled on from my neck all the way down into my lumbar spine. I had a non contrast MRI of my entire spine months ago before the symptoms got as bad as they are now. I am very scared and am having the worst time getting into a neurologist. I've had repeated workups that have been negative such as acute phase reactants and autoimmune panels etc. Has anyone experienced anything like this? It almost feels like the inside of my spine is inflamed throughout the length of it or something structural maybe in my neck causing pain all down my spine.
Replies to "Hi, I am in my 20s and have started having symptoms that have been worsening. The..."
I recently went to the ER at one o the Mayo campuses a few days ago actually. I was hoping to get rescanned there but they only did repeat blood work because my neurological exam is overtly normal. I have no focal deficits which I guess is fortunate but unfortunate in the aspect that I'm taken less seriously. They did however give me a referral to neurology and they said they usually can get you in within a week, so I should be able to see one soon!
I had a broad based disc bulge at C5/C6 with no signs of damage or compression of the cord and otherwise my MRI was completely normal. I will ask for a Lyme test! Thank you.
I have not experienced this, and I'm sorry that you are going through this. The only thing I would do is to take Magnesium citrate (400mg) and potassium citrate at least 10 capsules (99mg each). This calms the nervous system. I would do this until you get the help you need. Good luck with everything.
This sounds very similar to what I’m experiencing. I was convinced it MS, but neurologists, based on MRI, does not. 5 months of living in pain or extreme discomfort on good days. About to get a spinal tap and I want to be sure they test for everything possible, so I have been doing research. Years ago I got genital herpes and after the original outbreak, I would get an outbreak only very occasionally usually during extremely stressful times. I never took anti-viral, because it would typically be gone in 3-5 days and happen maybe once every couple years. I bring this up because I think this has something to do with the hell storm of neurological attacks happening to me right now. I’ve found articles too that support.
While I find a lot of information here, I’ve yet to find anyone with my symptoms, but what you describe comes close. Hope you find some answers soon.
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Do you have a primary care doctor who could do an expedited referral to a neurologist? With these symptoms, you need to see someone quickly. You could also try an ER at a major hospital. An MRI of your brain might be helpful, if a doctor orders one. So the MRI of the spine was normal?
Have you had Lyme test? Try to get a Western Blot, not the Elisa they use for screening. You can ask your PCP about this.