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@journey99

I have the CHEK2 gene mutation. I only learned of CHEK2 when I was diagnosed with BC in January 2023. I am currently in treatment for the BC. Interestingly, I had my thyroid removed in 1994 when I noticed it was enlarged. Went to the doctor and found out I had hyperthyroid. They told me it was pre cancer and a simple fix was to remove it. I have been on Synthroid since then. I haven't had any problems with it once they found the right dosage. My dosage only changed when I was pregnant and then after the pregnancies it would reset back to my current level. I only take the name brand Synthroid which is more expensive but seems to work best for me.
The recommendation I received on the gene mutation was to have a colonoscopy every 5 years rather than 10.

Wishing you only the best.

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Replies to "I have the CHEK2 gene mutation. I only learned of CHEK2 when I was diagnosed with..."

Hi @journey99

You are the second person to say they only take Synthroid brand, not the generic because Synthroid worked better for them. Both of you had your thyroid removed so I'm guessing on a much higher dose than me with hypothyroidism for 35 years. I took Synthroid in the beginning, but I've been taking the generic for 30 years since that is what insurance covers. I was just told to stick with the same manufacturer when using generic as they may all dose slightly differently. I'm wondering if you could tell me exactly what difference you noticed between the name brand and generic. Thanks.