Hey there teedlum, no worries 🙂
I’m sorry to hear it took a long time to be recognised within the medical sphere. It’s a real failing of the medical community to remain unaware of the diagnostic and interventional approaches to address such a common problem (especially after an injury). I used to tape myself together each day (doing some serious damage to my skin) just so I could walk, using rigid sports tape, around my pelvis and upper thighs, and my lower spine. Tape off, the entire pelvis would almost dislocate off the sacrum if I tried to flex my hip (at the acetabulum - knee towards chest movement) while laying down, much worse on attempting action while standing).
You’re right: it affects not only lower limb articulation, it also impacts on spinal function, and can also impact on pelvic organ function (distal colon, bladder, and reproductive organs).
I was taping for a total of 9 years prior to being adequately recognised as having ligamentous rupture and resultant hypermobility.
I hope you can get some really great help to get you back on track 🙂🌺