← Return to MDS and thyroidectomy

Discussion

MDS and thyroidectomy

Blood Cancers & Disorders | Last Active: Jul 2, 2023 | Replies (2)

Comment receiving replies
@loribmt

Hello @nbadry. Welcome to Mayo Connect. While you’re waiting for other members to reply, have you spoken to your hematologist about what might be the best timeframe for thyroid removal if warranted?
When were you diagnosed with MDS?

Jump to this post


Replies to "Hello @nbadry. Welcome to Mayo Connect. While you’re waiting for other members to reply, have you..."

Hello. I was diagnosed nearly 4 years ago, aged 50. So far the pattern has been for my Hb to stay stable-ish for awhile, and then do a sudden big drop. I've been told that I when I need transfusions, I'll start on the drug Revlimid, and be referred to a transplant specialist. I'll be seeing the haematologist in a couple of weeks. I can't decide if it's silly or wise to have thyroidectomy early....Thank you.