I have a health journal and write down all my questions as they come up. This way when I see my HemoOnc doc they're all in one place. I should do on MyChart in Epic that stores all my doc visits, test results etc. I'm sure there's a spot for notes. I'll do that soon, I haven't been able to work so I've got WAY to much free time on my hands. I really don't like it, hope I can get back to work doing what I love, helping our seniors and their families. Brings me joy 😊 ❤️ 🙏

Usually they are checking an for enlarged spleen and if any of your other organs appear swollen. They usually order an abdominal ultra sound when first diagnosed to determine if the PV has affected any organs.