Dear Vickied,
I started out with a diagnosis of Dry Macular Degeneration. I was monitoring my vision and making many appointments with my Retina Specialist because my vision was deteriorating. I had been told to call for an appointment any time it appeared that my vision was getting worse. The concern was that it could be turning into wet macular degeneration and I would need shots in the eye to save my vision.
When my Retina Specialist diagnosed my problem as Fuchs Dystrophy, he discharged me with instructions to call for an appointment if I saw a big "S" on the Amsler Grid.
That was my experience with my Retina Specialist. I don't know if you should see a Retina Specialist. However, it might be nice to establish a relationship with a Retina Specialist.
I would definitely see a Cornea Specialist for my Fuchs. There is a support group called "Fuchs Friends" on the Internet. They have a database of the best Cornea Specialists from all over the world. Here is their website: https://www.cornealdystrophyfoundation.org/support-groups.
I wish you all the best!
Denise