I found the Hydrea was knocking me out when on 1 500mg 7 days week. Spoke to Haematologist who reduced to 3 tabs per week. As hydrea are chemo drug, I wasn't happy with that. I believe there are other drugs for PV which don't come under the category of chemo. Havn't had a venesection for months as hct was within the normal range. Had seen a post on here where someone suffered from sleep Apnea, which apparently is linked to PV. looks like I have the condition, didn't have it confirmed but told my snoring can be heard next door😆Mentioned this to Haemo assistant, she nearly threw a tantrum😬said my PV Ruba Vera was confirmed via blood test almost 2 years ago this month! Sure I told her I knew that full well, sadly but thought a chance that snoring! may have helped to trigger off clot in lung🤔Am already on blood thinners since the year before resulting from a clot in leg.
Also suffering hair loss from hydrea, God knows my hair was always very fine so could do without that side effect from hydrea. Have to investigate an alternative PILL & see how I score!!