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Myelodysplasia Complications

Blood Cancers & Disorders | Last Active: Jul 17 6:21pm | Replies (7)

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@jelilien

Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I am not sure why, but this is the doctor he was refered to when he was first admited to the hospital and diagnosed with MDS. He is currently under treatment with epoetin and frequent blood transfussions. He will also start with an additional pill soon but I don't know the name of it. He has an appointment this Tuesday to speak with the nurse about the risks of it and how it will work.

What do you think?

Thank you for sharing your experience and thoughts.

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Replies to "Hello @loribmt, he is currently seeing an oncologist for his MDS diagnosis not a hemotologist, I..."

Hi @jelilien, I think right now your dad seems to be in good hands. Often oncologists are also hematologist. I know there were at least 6 listed as oncology hematologists in my clinic where I was treated, my doctor being one of them. But he also saw other cancer patients such as breast, pancreatic, colon, etc.,. It sounds like your dad’s oncologist is on top of things with treatments.

The best bet is to wait until his appointment Tue and you’ll learn more about what meds are being prescribed next.

You’re not alone here…we have your back. So if you have any questions about medications or what the doctor has mentioned don’t hesitate to ask. A number of members had MDS and I had AML, (it’s older and more cantankerous granddaddy 🙃). We’ve all had meds and experiences to share. Hugs.