← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@nbs

Initially I thought I felt better with the 5mg dose but now entering my fourth week taking 2.5mg I feel great. I am able to walk a few miles even in the heat (early in the morning). What I am now not feeling which I did feel with the 5mg dose is sudden fatigue to the point of quickly nodding off. For me, it seems to take about 3 weeks for the effects of each dose to be consistent. My next echo is in a week. I am hoping my LVOT is at 20 or above or there will be a lot of discussing on my part. Since this drug isn't a cure but a prevention, I would assume that being taken off this drug (if my LVOT is below 20) would put me back to where I was before Camzyos.

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Replies to "Initially I thought I felt better with the 5mg dose but now entering my fourth week..."

Good morning-They wanted to take me off for a month because my LVOT is still at 8, from 75! But my doctor fought it for me and they agreed that the doctor can override the protocol, so if that happens, and you want to stay on, now you know it can be done. 🙂 I did not want to go backwards either!