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What is Jo1 re autoimmune & shortness of breath?
Autoimmune Diseases | Last Active: Jul 21, 2023 | Replies (4)Comment receiving replies
Hello @wnctiredoftired, I'm assuming Jo1 is referring to Jo1-antisynthetase syndrome. I wasn't able to find a member who has posted about the condition but there is another discussion that might be helpful here:
--- Antisynthetase Syndrome: Anyone else?: https://connect.mayoclinic.org/discussion/anti-synthetase-syndrome/.
It's good that you have a team of specialists working with you and hopefully you will get some answers soon. While we wait for members to share their experience, I thought the following information might be helpful:
--- Antisynthetase Syndrome (AS): https://understandingmyositis.org/myositis/antisynthetase-syndrome/.
Did your doctors mention or think you might have Jo1-antisynthetase syndrome?
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I know next to nothing at this point. 🙁 Thank you for responding. I have complained about short of breath with exertion for many years, and the response has been to see a Cardiologist & a Pulmonologist. The tests have all come back normal. Until now, I had stopped seeking specialists because its been too hard to find any within our medical health providers. Yesterday was my first meeting with a Pulmonologist recommended by a friend from another medical health organization. As he reviewed my past labs etc, he saw something about positive Jo1 antibodies (all foreign to me), and is forwarding his concerns to a Rheumatologist I have seen only once. I will see him next week.
In the meantime, I've been researching online ... what I read sounds like scary unreal stuff. I know I have a high positive ANA, but I've never thought it was more than a nuisance.
Thank you for the links you sent.
Blessings, wnctiredoftired