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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 22 2:38pm | Replies (736)
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@rover27

I just started 5 mg Camzyos on Tues. night(June 27th) and for the last 3 days have felt not so good. Was wondering if others had similar symptoms. I've got the dizzy, spacey, somewhat disoriented type feeling. Not much energy. And a racing feeling in heart. Almost like an anxiety-type feeling. I've noticed that feeling before, but mostly when lying down on my left side. This is there all the time. My heart rate seems normal. Would appreciate any feedback.

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Replies to "I just started 5 mg Camzyos on Tues. night(June 27th) and for the last 3 days..."
Debra, Volunteer Mentor | @karukgirl | Jun 30, 2023

Hello @rover27, while we wait for other members to chime in, let me welcome you to Mayo Connect! There is a lot of information on this site, so I hope you will take some time to poke around and learn as much as you can. Other members taking Camzyos will be able to respond better than I can, as I had open heart surgery for my HOCM. It sounds like it really works for some people, and others have had issues. Is your cardiologist experienced in treating HOCM? That's really important.

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kelliw | @kelliw | Jul 2, 2023

Hi Rover27- I have been on Camzyos since March 30th and have had very good results. I would definitely call your cardiologist. Maybe the 2.5 might be better for you to start? He/she would know better. I had dizziness for about 2 weeks, off and on the 2-3rd week in. It went away. Sometimes, when I lay on my left side I get a couple of sharp pains, which kind of scared me, but it hasn't happened for awhile. I am taking my BP every morning too and writing it down as well as how I am feeling each day, in that gray journal BMS sent in the welcome pack. I started out on 5mg and they lowered it to the 2.5mg because my heart responded so well to Camzyos. I have noticed I am feeling tired in the afternoons, since going down to 2.5, but other than that I feel great. I hope things even out for you and you start to feel the benefits!

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