Any correlation between Essential Thrombocythemia & high B12?

I’ve known about my ET since 2013, don’t now how long I had it before that. My platelets had always been 950-1200 range up and down. I started taking Hydroxyurea 1 year ago. Now my platelets are down in safe range. My B12 has always been at the high good threshold, sometimes a little over. Taking Hydroxyurea has not changed it. For me Hydroxyurea has no affect on B12 level.

I understand what your saying, but my B12 is not a little high, but abnormally high. It's probably 10 times higher than what it should be. I do have an appointment scheduled with my Oncology Hematologist next week. Hopefully I'll get some answers then. I will update when I know anything.

Taking Hydroxyurea has not affected me in any negative ways and helps to keep my platelets lower.

I unfortunately had allergic reactions to the meds and my haematologist said I had to stop taking them. I also was not getting confirmation from my haematologist or my doctor that all my symptoms were as a result of my ET. I therefore was left with no choice but to seek alternative treatment. I joined this support group to see if anyone else was unable to take the meds and had sought alternative treatments and also if others symptoms were the same as mine. I am now trying homeopathy and diet to manage my condition. I have found this support group very helpful and it is a shame that some people cannot support their fellow sufferers no matter what route they choose to manage their condition.

I believe my original post was not interpreted as I intended. I was interested in actually not taking Vitamin B12 orally or by shots. My question was if anyone has excessively high B12 levels in their blood without taking vitamins? My B12 is about 10 times higher than it should be without supplementation.

I am very sorry. I wasn't responding to your specific concern about B12, and I should have made that clear. Most ET patients with B12 problems have had low blood counts. I hope you will keep us up to date on what your docs find out.

Hi. My father was recently diagnosed with ET and would rather seek out alternative therapy as well. I would love to get some information from you. Thank you

Sorry to hear about your Father, I hope he is ok. I have been following Anthony William (Medical Medium) blood clot diet for the last couple of months and have to say all my ET symptoms are not as bad as they were. I had become allergic to wheat and gluten some years ago and dairy was causing very bad headaches and having read Anthonys book it now makes sense having a blood disorder. I have my 3 monthly blood test next month and I will be very interested to see if all this has had an affect on my platelets. I am allergic to aspirin so I am also taking homeopathy, arnica 200 twice a day. I have also read a study that found that purple grape juice reduced platelets which again fits in with what Anthony says and as I am eating black grapes hopefully that will help. Hope he finds something that works for him.

Just found out my vitamin b12 very high 1300...is there anything you can take to lower it

All my doctor told me was that I should not take any supplements with B12. She also said that it is common for people with ET to have high B12 levels.

I do not have et...but very concerned about my level..in my research I have found nothing to bring it down ..just everything you read is not good...