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The first year after diagnosis, my doc was using my hematocrit #’s to determine phlebotomy frequency and med dosage. Switched to using hemoglobin because my WBC and platelet #’s also run high and I understand that can affect your hematocrit readings. I’m guessing too high a hydroxyurea dosage can knock your platelet levels too low. I don’t mind the monthly blood tests because I have a lab right close to my home. And my treatment center has a very cool reporting system that I can access from my PC .It gives interesting graphs and charts that I can use to track my progress.
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Make sure you are taking a blood thinner I am on eliquis and it has helped me tremendously to keep my blood thin. I was on hydroxaurea, but I had to switch to Jakafi to get my blood to slow down
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Interesting! My platelets and white cells run high also. Actually, the platelet count is what determines if he adjusts the dosage. Yes, I agree monthly labs are fine and keeps us on top of things. I too have a “my chart” on line so I see results by end of the day at home. It’s very informational. Sounds like we are in very similar situations.