Glioblastoma Grade 4: How do handle family conversations, sharing?

I communicate after each MRI, blood test etc via text to family members, two levels down, and a few very close friends.
This seems to work well.

Keeping family and close friends informed and updated on your condition will provide them an opportunity for them to support you through your journey.
The support and associated feeling of not being alone will be a great comfort through the times ahead. It also allows those folks to handle mental pain, etc. and prepare for the future.

Can’t find any support groups or help dealing with malignant solitary fibrous tumor of the brain. Was supposed to be benign but pathology came back malignant WHO grade 3.
Finished 6 weeks of daily radiation. Now waiting for PET SCAN TO SEE IF IT HAS METASTASIZED.
Not much info for this tumor, apparently very rare.
I feel helpless, no prognosis, no support group.
Any referrals?

My 57 year old son passed away with GMB 4 18 months after diagnosis. At one point a few months before he passed he said to me, "Mom, if I die today it will be okay with me." He meant it. He had made peace with his Maker and his wife and daughter were prepared and provided for. We put up a valiant fight and did everything we could. In retrospect I would have agreed to him eating more ice cream and to trying so hard to overcome this terrible terrible terrible cancer. But we were peaceful and ready when he passed. We miss him terribly but know we will see him again as we are and he was a believer in Christ as Savior. I hope I haven't overstepped the rules in sharing this. My heart goes out to you and your family.

I meant "not" trying so hard.

We had a huge prayer chain and people left messages for my son regularly, sent cards and some wrote. Had lots of text messages of encouragement and love. There was lots of love going on and that truly made a huge difference for our family. It was tough no doubt. There were also wonderful sweet times and precious memories.

You and your family have my thoughts and prayers for the loss of your son.

Thanks for the "hug" since I really need them.

To start, my thoughts are with you at this particular time.
It is important to understand that everyone's journey is different and so what I write may or may not be applicable to you - there is no right or wrong way in how people deal with brain tumours.
My wife, Deborah, was diagnosed with two brain lesions in April last year with no symptoms until the day before, and we were told that they were glioblastomas in the following month.
We were both involved in bereavement awareness for churches for a number of years, as well as her support for her pupils whose parents had died. We had ensured that our wills were up to date, arranged Powers of Attorney (in UK, it allows other people to make decisions if you are unable), and had our funeral arrangements made out three years beforehand - so we are an unusual couple in that respect.
It is beneficial for you and your loved ones is to be honest with each other - your and their worst fears and best hopes. Take it gradually - you do not need to cover all the items in one go!
In our case, we also set up a WhatsApp group (which is still going with over 80 members!) so we could give all the information in one go without repetition. It also enabled Deborah to give voice messages (which people loved to hear) when she was too tired to write.
Deborah went to be with our Saviour in the December at the age of 58 years. She is sadly missed but I know that I will be with her again in heaven to worship Jesus together again.

My update, completed 6 weeks of radiation and daily oral chemo (Temodar). I'm on a "break" until mri in late July. Side effects included fatigue in weeks 5, 6, and 7. Nothing intense, usually a walk or quick nap helped. Blurry vision in one eye after radiation. It mostly cleared up within 15-25 minutes but noticed some lagging blurriness. A little ringing and swim ear on the radiation side. Probably should've continued nauseated and constipation pills for a few days after treatment ended. No big concerns but had symptoms I had avoided and probably too excited to drop it all. I've had feet soreness, sort like I'm walking on bone. Thick socks and house shoes have helped. No appetite or weight loss with no soars and red areas with radiation, a lot of lotion in the bald area. I've been working fulltime remote so thankful for many things. Thank for the notes and support.