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MLeeB (@MLeeB)

Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: May 24 8:37am | Replies (147)

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Hi Delilah…thank you for your words of encouragement…The humps are sticking with me for a while I guess as I am still at 25mg of prednisone. When I attempt to lower the dosage under my doctor's guidance, symptoms come back and I have to go back up for an extra week….Tomorrow I will try 20 mg. and see how that goes. The rheumatologist called me on Friday and is going to try and fit me in this coming week. He cannot understand why he was not contacted sooner but I told him that my family doctor was making the decisions as to the course of action. Hopefully, he can give me some new insight on things. Do you also still have over whelming exhaustion? Whenever I do anything like a bit of baking, a quick trip to the store or even walking up & down a flight of stairs, I sweat to the point of my hair being wet. I think the is my most upsetting part of this disease…Hang in there and we will get thru this…

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Replies to "Hi Delilah...thank you for your words of encouragement...The humps are sticking with me for a while..."

I do pretty good. I know if I overdue my overheating seems to happen and I'm then fatigue. Hate grocery shopping as I always feel by the time I get to register I just want to leave the groceries and go. Have the hair sweat really bad to the point of using kleenex to squeeze the dripping out. I always feel people at grocery are staring at my due to it and thinking SHE must have a fever. Have had the head overheating problem before diagnosted with PMT. It seems to happen when I overdue. I have COPD/ Asthma also diagnosed years ago. Also old case of Lymes found on testings in June 2020. Wish I had more than GP sometimes guiding me but he does seems to be helping and knows how to decrease prednison. He has checked thyroid for the overheating but a okay. I often wonder if to much medication causes the overheating? I also want to loose more weight and I think that is the biggest hurdle I could do to help myself even exercising small at first and working upward. Being more aware of bad carbs and sugar in foods also will help us. We will be winners.

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