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I am curious: What symptoms did everyone have in the beginning for PV?

Blood Cancers & Disorders | Last Active: Feb 1, 2024 | Replies (48)
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@nypara66

I had a lot of tingling in my hands and feet. Headaches and a red face that I thought was menopausal haha I am grateful I didn’t get the body itching like most. I’m six months in from diagnoses and hoping to get the dosage right with the hydroxyurea. Labs tomorrow 😊

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Replies to "I had a lot of tingling in my hands and feet. Headaches and a red face..."
inevanmac | @inevanmac | Jun 29, 2023

Good luck. May hydroxy do it for you. I was only on it for a few months before being switched to Jakafi 10 mg and then 20mg. Now really stable except for side effects “scrungy toes” (like scrounged up socks continually under them) and heavy legs. It is what it is; don’t let it stop you living your life although occasionally you may have to pace yourself. All the best.

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