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← Return to At NJH and need to vent
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MAC & Bronchiectasis | Last Active: Jul 6, 2023 | Replies (70)
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Hi Bon,
I am very sorry to know about your disappointing experience in NJH. This is the trip you had to make to have a peace of mind, right? Now you did. Focusing on trying to get the most out of the trip. One thing you know now is that you do have bronchiectasis and MAC, so you don't have to doubt any more. Did he answer your questions regardless of his irritation? Focusing on what he said, not how he said it. Did he suggest the path you should take to deal with it? Now you have some different perspectives/opinions, to me the more information you have the better it is to help you make the right decision for yourself.
Take care!
Ling
Replies to "Hi Bon, I am very sorry to know about your disappointing experience in NJH. This is..."
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Hello Ling…..I am seeing a different Dr next week here so I will bring my list of questions and maybe he’ll be nicer to me. NJH As a while is a good place, but my expectations were that all the drs that treat you get together and brainstorm regarding solutions and answers. That doesn’t seem to be the case. Live and learn. I’m trying to focus on what I have learned here and proceed forward to Dr Swenson in Atlanta. I hear he’s really good with mac and Bronk and is very nice too! Imagine that! I ordered a vest..I nebulize twice a day, and will start an exercise routine when I return home. I hope you are doing well!