← Return to Want to talk about Multiple Myeloma: Anyone else?

Discussion
Comment receiving replies
@loribmt

Hi @patientpainter, for some reason I didn’t catch this reply of yours before! I’m sorry for the oversight. Welcome to Connect. I see you have MM and had cells collected for a transplant.
Since this reply is now a couple months old, you would have had your transplant by now. How did you do? How’s recovery going for you?

Jump to this post


Replies to "Hi @patientpainter, for some reason I didn’t catch this reply of yours before! I’m sorry for..."

Hi thanks Lori- the transplant ( autologous) went well, and I'm two months out. Very little hair has returned ( fell out completely at 15 days, though very glad eyebrows and eyelashes stayed), but energy has!- though I suspect that once I start up the maintenance drugs( Revlimid, bone strengthener, etc.,) there will be some more fatigue again. Still, this will be better than pre-transplant!
I will have a bone marrow biopsy in September, to see how it all is. And all the childhood vaccinations again-, at six months out from the transplant.
I still have a sore back every day and sore ribs some days- and wondered whether that will ever get better. Anyway it will be a struggle with side effects of all medications, for life now. But I'm enjoying getting back to a once a month instead of weekly doctor's visit...and I'm excited (and grateful) to hear of so much research being done into MM right now, and some truly promising new treatment under study, that may become options when my remission ends...:this is a pretty lucky time to have developed this disease, compared to just a few years ago.
I wish all my fellowsufferers the Best of luck, in finding their own paths to strength and extending their lives. And I am awed by the myeloma doctors I have encountered, and their interest and ability in juggling so much complex information! Thank you thank you, is all I can say- except for"Keep it Up, Please!!!"