Platelet infusions

Just checking in to see how your appointment went today…or is still upcoming perhaps. The transfusion will help recharge your system again. Not nearly as fun as a Lemon Drop martini… I can’t drink those anymore either. Boy, our lives sure change abruptly when we least expect it. 🙃

I’m sorry to hear you have zero appetite. Makes it very difficult to feel like eating anything. It’s great that you’re still able to join your cohorts at breakfast and lunch. It really does seem to help when you’re sitting with a dinner companion to be able to eat, even if you’re not very hungry. Talking and eating seem to go hand in hand…I tend to overeat when I’m out with friends. Hah, and then I can make all kinds of excuses for eating things that are usually not on my healthy diet list!

It sounds like you’re in a very nice facility where you can migrate over to different areas as the need arises. You’ve certainly been blessed with a long, independent life. A friend’s mother who lives in Madison had her 93 birthday last week. She just moved to a similar facility where she is independent but has the ability to change services when warranted. That takes quite a bit of the worry away from unexpected life changes and having to move.

I hope your day at the clinic goes well. Let me know what you find out, ok? I promise I’ll always be frank and open with you so nothing is off limits. Hugs.

Yesterday was one of the most bazzare yet. Routine CAC went well even though numbers showed no improvement. Upon returning home everything went topsy/turvey. I have no memory of anything happening for over 12 hours, including never going to bed. I have no idea of what's going on.

What a weird event! I wonder what happened for you to have no memory of anything for over 12 hours. Where were you when you realized this happened? Did you wake up in bed?

Hi @crhilston, just checking in to see how you’re feeling today. Anymore memory lapses?

Yesterday was one of the most bazzare yet. Routine CAC went well even though numbers showed no improvement. Upon returning home everything went topsy/turvey. I have no memory of anything happening for over 12 hours, including never going to bed. I have no idea of what's going on.

Sorry to report nothing that's good news. Moving to assisted living tomorrow. Have decided I can't live alone any longer. Also, I have a consult with my oncologist tomorrow. Thins are moving quickly.

Hi @crhilston, this is a wise and pragmatic decision to move over to assisted living, especially with these weird episodes you’ve been experiencing. Having a nursing staff keeping an eye on you and being there should you need anything will be comforting.
I know you wanted to stay as independent as possible and that luxury is so hard to give up! I’m never one to rely on assistance either but boy, did I have to learn in a hurry that I don’t always get to be in control and, that relying on other people to help me wasn’t so bad after all. Asking for help is one of the hardest things to do!

So I hope this shuffle over to assisted living will at least bring some peace of mind that you have back-up right there for when you experience a ‘not so steady’ day.

It will be interesting to learn what your oncologist has to say about these lapses you’re having. I wonder if it’s related to the low red blood count. Will you be having another transfusion?
Best wishes for a smooth move today. I hope your new neighbor’s are friendly. ☺️ Air-hug!

Again, thanks so much for talking to me via connections! I am on a once-a-week infusion schedule now, however, I'm not sure it helps. But, why not try? I had my weekly CBC yesterday; the numbers are nearly all negative with slight ups and downs here and there. I did get a new concern though. Absolute immature granulocytes went from steady to 290 in one week. According to Mayo, this is an early marker for sepsis. Your thoughts?