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Anyone here have Fuch's Dystrophy?
Eye Conditions | Last Active: Oct 23 12:11pm | Replies (84)Comment receiving replies
Hi Bruce,
I ordered from the pharmacy that has a box of 5 bottles. The hardest part for me, was paying for the eyedrops. It was complicated. However, the drops arrived as promised.
I am in the Upper Peninsula of Michigan right now. I live in Naples, FL. I am very fortunate to have one of the top surgeons, Dr. Mark Gorovoy as my surgeon. He's been doing DSO surgery for 8 years. Surgery went really well and I plan to have my left eye done when we return to Florida in November.
I'm sure your surgery will go well! Keep up with your eyedrop regimen and you will have a successful outcome! Let me know how you are doing. Best wishes, Denise
Replies to "Hi Bruce, I ordered from the pharmacy that has a box of 5 bottles. The hardest..."
Hello @denisemarys - thank you for sharing your Fuchs journey. I'm happy to hear that you were reading better back in April. Fantastic that you avoided a cornea transplant. How is your improvement now, after time and continued use of the drops? Wow, interesting about the drops being from Japan. They must be cutting edge, and expensive!
DSO is new to me. Ten years ago I had partial thickness corneal transplants (aka DMEK) in both eyes which took place couple of months after both cataracts had been done. I don't recall DSO being an option then, although, I may not have been a candidate regardless. My surgeries were a success, thankfully, and still going strong. At the time I was told the transplants would last around 10 years. I'm 53 now and recently hit my 10 year anniversary, and while there are signs of cell loss, I rarely have visual disturbance. I did a little online research to get up to speed and found this article from the American Academy of Ophthalmology to be helpful:
Beyond Corneal Transplants for Fuchs: Descemet Stripping Only:
- https://www.aao.org/eyenet/article/beyond-corneal-transplants-for-fuchs
What were the primary reasons your doctor (or you) chose DSO for your Fuchs instead of transplants?
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Thank you Denise. I received 5 5ml bottles in a box, that sounds like what you received. Thanks for the good thoughts and best of luck with your next surgery.