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PV and fatigue

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (92)

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@chella65

Hello I'm a Newby too. I'm 65 but have been telling doctors since I was 60 I just didn't feel good or myself. I have other issues that we all that were the causes.
I'm under a 6month period of observation and labs. If my levels are still high my doctor will confirm the diagnosis. I did not have a positive for Jak however my doc said about 20% false neg. My 6 month period ends in Sept so she will decide what treatment.
The exhaustion is rough. Sometimes I wake very tired but there are times I'm moving right along and suddenly my energy disappears and I feel like like I've bottomed.
I look forward to Sept, to at least start treatment.

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Replies to "Hello I'm a Newby too. I'm 65 but have been telling doctors since I was 60..."

I feel the waiting periods are just the worst! Hopefully your symptoms haven’t been to bad. Have you had blood removed? How are your H+H levels?