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Does EBV cause Neurological Symptoms?

Infectious Diseases | Last Active: Feb 16 12:50pm | Replies (23)

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@shersidhe

@minnerhead1 Hey- I have, or have had at some point in the past, all of your symptoms. After years of diagnoses ranging from MS to fibromyalgia, I finally received a correct diagnosis of Sjogren's Syndrome (SS) after a doctor tested at just the right time for it to show up when running bloodwork for rheumatoid arthritis (RA). (SS is in the same class as RA & lupus, but often only shows up in bloodwork when in a flare up.) I couldn't see your uploaded pic, but with SS, mouth/tongue sores are common. I'm not saying that's what you have, but you never know. That being said, only recently, after going through an incredibly high stress time in my life, I was having all sorts of neuropathy (including pain, muscle spasms, unscratchable itchiness) and extreme fatigue. The fatigue is why I saw my doctor, who ultimately tested for EBV, which I had reactivated. All of the symptoms you describe could be chronic EBV. Since your current doctor didn't consider the possibility of that, I'd recommend a second opinion. The problem I am finding is that because doctors are only just now beginning to test for EBV, there aren't many MDs treating it. Neither my primary care nor rheumatologist had any recommendations for specialists, so for me, it's just been a time of treating symptoms and giving myself time to rest and recover until I feel more like myself. I'm still looking for specialists, but so far, all I'm finding are functional/alternative medicine groups, who don't take insurance. There's no cure for EBV, but it cycles in and out of remission, really coming out in full force during stressful times. I'm sorry you're going through it, but maybe knowing all the freaky things you're experiencing aren't all in your head, and are happening to other people, could give you some comfort.

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Replies to "@minnerhead1 Hey- I have, or have had at some point in the past, all of your..."

Thank you so much for the reply. I will look up Sjogrens to get some more info on it. I sure hope you are feeling better and are getting some relief from your symptoms. 🙂

@shersidhe I felt like I was reading my own story. My current diagnosis is fibromyalgia, but I am wondering about that now. About 10-15 years ago they tried to pin MS on me; ruled out. Then it was fibro; current. Now I had blood done and 2 weeks ago I had blood tested and the EBV Nuclear Antigen Ab, IgG is >600. I'm curious about your diagnosis and @minnerhead1 because I have or I had symptoms you both experienced. The tongue sores caught my attention. My Rheumatologist did not know what to make of it. However, when I stopped taking Lyrica and Cymbalta they went away and I haven't had them since. I find this community invaluable because it always solidifies what I knew, but was alone. It is unfortunate, but the individuals I know with some sort of immune disease like Lupus, MS, Fibro, etc have "classic" symptoms. It seems mine are a little of "this" and a little of "that" sort of thing. Did either of you have mononucleosis at any point in your life? I did when I was 15 and I wondered if you did too.

Blessings,
@luv2lrn