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← Return to PN: Current research?
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Good morning, John
I hope your exercise bike didn't insist you stay in the saddle for 20-30 miles!
Since I created this topic about current research, I've been asked by a few why I'm suddenly interested in current research. I guess it's just sort of a natural segue for me. I'm the kind of guy who can get lost thinking only about his own predicament. When that happens, I find my spirit goes down and down and down. Finding something else to attach my thinking to has always helped me keep my spirits up. PN is so dominant in my life that it's hard to find something to involve myself in that's not related to PN. That's why I came up with the idea of learning something about PN research. (I have other things going on in my life besides PN, like my work, but I can't totally escape thoughts of PN––and why should I try to? Trying to "make" myself not think about my disease would be self-defeating, like trying to "make" myself not think about that toothache: my tooth would only hurt more. ) So, why my interest in current research? That's just me. I long ago learned that if I'm going to keep my spirits up––for my sake as well as for my partner's and my friends'––I need things to be thinking about other than me and what PN is doing to me.
I'm due to climb on board my exercise bike in a few minutes. Every time I climb on board that devil machine, I'm hoping the stirrups don't grab hold of my toes and keep me peddling for days.
Have a great day, John!
Ray
Replies to "Good morning, John I hope your exercise bike didn't insist you stay in the saddle for..."
Ray,
I don’t know if you’ve visited the “INF" section of this website about the research/treatment being given at Loma Linda University and Medical Center in Calif. Their claims and testimonials, though limited, make it sound too good to be true. Which we usually need to be careful of. But LL is a highly respected, legitimate medical university and I want to believe that they would not risk that reputation by running a scam. But you never know.
https://connect.mayoclinic.org/discussion/nerve-treatment-anyone-tried/?pg=1#chv4-comment-stream-header
I am hoping to go to Loma Linda for the initial evaluation and treatment using the INF, Intranural Facilitation Therapy. https://lluh.org/services/neuropathic-therapy-center/blog/what-you-need-know-about-intraneural-facilitation-inf
I live about 7 hours away in the Silicon Valley area of Calif. But I starting to have the numbness balance issue on and off, some days pretty bad. I'm having some issues trying to get someone to drive me there since I’m getting leery of my driving abilities, and my circle of friends is now very limited, since about 7 of my close friends have left Calif in the past few years. But that’s another story.
So since you were talking about research, I thought I’d send this to you. Have a great 4th! I enjoy you writings.
Dave
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Hi Ray! Enjoy your ride 🙂 I have my exercise bike (Teeter FreeStep) located where I can watch TV while I'm exercising. Love watching those BBC TV series. Latest one I finished was the Detectorists which was kind of interesting in an odd sort of way. Have to love the British humor.