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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (808)Comment receiving replies
Replies to "I just started taking camzyos yesterday, but I am on a beta blocker, when I spoke..."
@elmore71111, thanks for checking in. Your new journey on Camzyos is just beginning! Thank goodness for all these great members sharing their experiences with each other. Nobody knows like someone who is going through it or has gone through it. It sure seems like a roller coaster ride...up, up, up, up and then BAM! Over the cliff edge! Just having HOCM is stressful. But the added anxiety of a brand new medication with no long term studies, being at the mercy of a drug company's protocol...yes, sounds stressful to me. I hope you sail through the next few weeks with little to no side effects. @kelliw, @hansj, @jaymaysea, @nbs and @starbuck41 have all been on the road before you...each one has a bit different experience, so I hope you can lean on their shared experiences. Mayo Connect is here for you! When do you see your doctor next? Are they easy to get in contact with if you need questions answered or need help?