Thanks Lori. I needed that and have reviewed each link.
I think knowing the diagnosis and its aggressiveness and the statistics with likely outcome, I want to start this fight. I have too much to live for to give up.
The docs I have in my area have been Frank with me which I like. They have expedited procedures and even my Charlotte Transplant team have informed me to get into a program ASAP. This was diagnosed in April and still I have no plan of treatment.
I have researched and Mayo has best outcomes for my situation “if caught and treated early” per Mayo statement.
I just want to make sure I am in the right group as oncology is who consulted with me. I reached out to the Transplant team and they knew noting about my case. I guess there lyes my frustration.
But I am letting it go and know Gods will is in my life and has always been faithful to me.