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PV and fatigue

Blood Cancers & Disorders | Last Active: Jul 14, 2023 | Replies (92)

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@sap21981

Thank you for responding…after about a month of fighting with h the insurance company to approve testing, I did have JAK2 test which did come back positive. My hemoglobin levels are at 21 and hematocrit is 68. I’m concerned about clotting while waiting for levels to come down from phleb draws. Also, I’ve been experiencing what feels like pretty regular palpitations. Not sure what’s causing it, but I did mention it to my hematologist and he didn’t seem to concerned.

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Replies to "Thank you for responding…after about a month of fighting with h the insurance company to approve..."

I was diagnosed a year and a half ago. It is normal to be freaked out by being diagnosed with a condition you probably never even heard of before. I was too at first. Your #’s are pretty high but so were mine at first. They came down after several phlebotomy visits which I was doing every two weeks. Both your fatigue and palpitations are probably due to your blood being so thick for a long time. Once you get it thinned out you should start feeling a lot better. My doctor then put me on a med called hydroxyurea and now I’m only needing a phlebotomy about every 5 or 6 months. I don’t have any problems with that med and it does a good job of keeping my #’s down. I get a blood test once a month now and my trigger for getting a phlebotomy is when my hemoglobin readings go above 17. Hope this helps. Don’t stress out- it’s not really all that bad.