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Hashimoto's Thyroiditis and Hives

Autoimmune Diseases | Last Active: Jun 27, 2023 | Replies (22)

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@jerrysgirl3

You know I suddenly broke out one morning with the worst hives ever in February 2023. Huge. Long. Itching. Like crazy. Body was literally buzzing. (I am a tall cell variant thyroid cancer survivor 2012). I had recently been diagnosed with lupus by my rheumatologist. He sent my lupus labs to a special clinic in California "Exagen in Vista CA."" They ran the Avise CTD test which found the lupus. Then he ran an "alpha gal IgE panel for tick borne illness. Then "immunoglobulin E, Total" with meats, an "allergens w/comp Rflx Area 1" which was environmental, then "Food allergy profile" ALL WITH BLOOD LABS and it came back I was allergic to egg whites, wheat, soybean, and milk"!!! I am 68!!! I sort of knew about egg whites but never had an issue. I immediately cut those foods out of my diet (what a nightmare) and hives just stopped. Awhile into my new diet I started breaking out a little and when I looked more closely on the boxes guess what? They were manufactured in a plant that also processed wheat, soy, eggs etc!!!!!!!! I am so hypersensitive I can't even eat something with none of the actual ingredients but processed on the same machinery!!! I was on methyl prednisolone for awhile but found allergy pills and powder with cornstarch in it worked better so have been off steroids for a few months and doing great. Side note: I went to an allergist for skin tests and she said to me "you don't need them. Im the doctor and im very good at what I do. The hives are just urticaria!!" No. I had food allergies. Were they lupus induced ? I had no symptoms of lupus. I have no clue. But the hives are gone along with cake and cookies lol but I've also lost some much needed weight. It might be something you want to look into. But at a specialty lab like above mentioned. I had lupus labs done at a regular lab and I only showed .1 over the high on ONE test and they said they were absolutely certain I didn't have lupus. When sent to CA it came back "strongly positive" with a high number!!!! Also two mild environmental allergies. Might want to discuss with the doctor. I also have CLL leukemia (which can also present with a rash). Im glad I met this doctor. He was a godsend. Good luck to you !

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Replies to "You know I suddenly broke out one morning with the worst hives ever in February 2023...."

I had fought with hives since 2018. Allergist was no help. I was taking over 40 Benadryl during an attack. So I went to Alternative medicine, who did food allergy test. Showed a bunch of different foods. But in 2023, I went to NM. While there, at one restaurant I told the waitress I was allergic to gluten and soy. Her responds was “oh you have Hashimoro disease “
A regular person gave me an answer on why. Explained a lot since then.
Best part is I gave choices and off Benadryl. I have found a OTC histamine blocker and if worst I use up to 2 Benadryl now. ( but I know I have to be home due to a regular reaction to it now.)