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Fibromyalgia -- Need help on how to handle severe pain

Fibromyalgia | Last Active: Oct 29, 2023 | Replies (156)

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@kaylynn

Hi,
I'm sorry you are going through this pain, and I completely understand and empathize with anyone with Fibromyalgia.
I've been battling long covid syndrome since 12/2020, and my 2nd neurologist diagnosed me with Fibro in March 2023. I saw a rheumatologist in October 2022 who thought everything was "in my head" and basically pushed me out her door. The neurologist also had an EMG done and I also have Polyneuropathy.
The neurologist told me to contact my Primary care provider and get a referral to pain management clinic, & was told they don't "deal" with Fibromyalgia pain. Thankfully my Primary has experience with Fibromyalgia, in addition to the long covid syndrome and is managing my pain meds herself.
In the morning, I take 2 - 650mg acetaminophen tablets, if pain is still not tolerable in 2-3 hours, I have a prescription for Tramadol and take 1 50mg tablet if needed.
I have prescriptions for Lyrica 75mg & cyclobenzaprine that I take before bed if needed. I also take 1 -20mg duloxetine at lunch time. I have not had any reactions to duloxetine, but the Lyrica makes me very groggy.
I hope you are able to get some relief from the pain and can find a provider to help you.

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Replies to "Hi, I'm sorry you are going through this pain, and I completely understand and empathize with..."

I'm afraid to take duloxetine (Cymbalta) because I've read it has terrible withdrawal issues if you ever want to discontinue it. I've heard Lyrica has the same issues. I imagine my PC doctor, and other doctors in my area, won't prescribe Tramadol until I try other meds first. I might have to break down my fear of meds to get pain relief. Next week, I'm going to a pain clinic and another clinic that deals with fibro and will ask about low dose naltrexone and medical marijuana. I heard LDN might take a while to be effective.