← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@jaymaysea

Thank you so much for asking. The dizziness has subsided, thank goodness. But, I am still fatigued and a little short of breath on exertion. Overall, I am feeling better.

My results from the echo on Friday showed my heart’s pumping performance was normal. My left ventricular ejection fraction (LVEF), was 60-65% (normal range: 55-70%). So my cardologist said it was safe to stay the course with Camzyos and that he expected that I would feel better as it reaches more peak effect with time.

He also said I could now stop diltiazem. I did not tell him yet that I had stopped the second day 😜because it’s counter-indicated. My heart rate is still up. So, he said we should discuss a low dose of Metoprolol. It’s also counter-indicated for Camzyos. Does anyone in the group take a beta blocker while on Camzyos?

Prior to starting Camzyos, my obstruction was only mild at rest, but severe post-exercise obstruction around 230 mmHg. I had a limited echo on Friday. So I will be very interested to do a stress echo after I have been on Camzyos for a while.

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Replies to "Thank you so much for asking. The dizziness has subsided, thank goodness. But, I am still..."

I am still on Metoprolol and have been on it since the beginning (six weeks). I will ask why.

I just started taking camzyos yesterday, but I am on a beta blocker, when I spoke with the clinical nurse navigator from camzyos and the pharmacist from the specialty pharmacy, they both said that was fine. I really hope you continue to feel better with each passing day! I just started, so I’m hoping and praying this works! This has truly been such a nerve wracking journey and I hate to hear how much added stress you’ve had to deal with!

Hi jaymaysea-I am on Metroprolol-50 mg/day. It hasn't interfered with how I feel on Camzyos. I had a really bad reaction to Diltiazem, so he put me back on Metropolol. I am hoping you feel better and better each day! I am do happy the dizziness subsided!.:)