Welcome to Connect, @tollie It sure helps to feel that you’re not alone when you have a new diagnosis. There are a number of members in our forum with Al-Amyloidosis, so let’s get you Connected! Hopefully they can help give you the information you’re looking for regarding what questions to ask your doctor and how to navigate through this new diagnosis and potential treatments.

First, here are a few links to informational articles on Amyloidosis:
http://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178

Also from Mayo News Network: https://newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and-10-signs-you-might-have-it/

From the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/22598-cardiac-amyloidosis
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Below are just a few of the many conversations where you can meet other members who have Al-Amyloidosis such as @countrygirlusa @blackscarecrow @jenrico @azlatina @0820 and others in multiple posts.
You can find more by typing in Al-Amyloidosis in the search bar at the top. But these will get you started. ☺️

Links to discussion about Al-Amyloidosis
https://connect.mayoclinic.org/discussion/al-amyloidosis-maybe/

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Recently diagnosed with AL Amyloidosis: Any advice?
https://connect.mayoclinic.org/discussion/al-amyloidosis-2/
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https://connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what/
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Diagnosed with AL Amyloidosis. What can I expect? (This is an older posting but worth perusing through all of the replies)

This reply contains videos with information about AL Amyloidosis. https://connect.mayoclinic.org/comment/732756/

Will this be your first visit with the hematologist?