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Ascites with infection, muscle loss, weight loss

Transplants | Last Active: Aug 14, 2023 | Replies (11)

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@toughyear2023

I appreciate the feedback. I am in liver failure and have been thru an extensive work up at the Mayo Clinic in Minnesota. I have stage 4 Cirrosis caused by Hemochromotosis. I have multiple MRI’s (none in the past 4 months) and my liver is scarred and they say they only option is a transplant. I’ve got to complete one more counseling session and then will be on the transplant list.

With all of that being said and also being very aware of my diagnosis, my question is why do I feel so good over the past 3 1/2 months. I am taking lactulose, diuretics, two different antibiotics and milk thistle. Everything I read about liver failure, I had the first of March to include Ascites that was infected, hepatic encephalopathy, massive weight loss and muscle loss.

I guess my question is why do I keep feeling better everyday (other than side effects of meds). Why are all of my liver enzymes coming down every 30 days? Why do I have so much energy, no pain, no Ascites in almost 4 months, great appetite and am putting weight back on.

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Replies to "I appreciate the feedback. I am in liver failure and have been thru an extensive work..."

Your story sound so very familiar. I was diagnoised with stage 4 cirrosis last August. I had over 7 liters of fluids removed and lost around 50 lbs as well. I went tpo Mayo in Jax but chose to have Vanderbilt only 3 hrs away take charge of me. I was working and bloodwork kept improving. I even had my local gastrologist say that if I was still jandice he would say that I didn't have liver disease. However, it turned quickly and my MELD score shot to 34. I had just completed my intervention class and was placed on the list. I was only on the list for 4 hrs until I was called to get to the hospital. I am very blessed. Yesterday was 4 month post LTP and I am doing great.
I tell you this not to be negative about what is happening now, but to let you know that getting a transplant can be a blessing.
I pray that you get well, however way it takes. an added bonus of transplant there is no more Lactulose required.