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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)

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@nypara66

Hi! I just saw you mentioned a transplant? Which one? My husband had a liver transplant 7 years ago and is doing pretty well. He’s on different drugs which are immunosuppressive also, as I’m sure you are aware of. Hydroxyurea for PV high risk for skin cancer as are transplant meds.

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Replies to "Hi! I just saw you mentioned a transplant? Which one? My husband had a liver transplant..."

Hi, @nypara66, I had a bone marrow transplant 4 years ago tomorrow! Initially I was probably taking the same immunosuppressant drugs as your husband. With organ transplants I know patients will be on those meds for life. With a BMT, eventually we can usually stop taking the meds at some point because our new immune system begins to recognize the proteins in our body and no longer rejects us! That’s the goal, but doesn’t always work out that way. There can be some lingering issues with graft vs host disease. However, even with a new immune system it will never be as robust as the factory installed version.😅 So sunscreen is a must!
Solid organ transplants do require lifelong immunosuppressants which act as an anti-rejection medication because the immune system will always see the organ as an invading entity. So yes, your husband will need that sunscreen and protective clothing. If he’s like me, we’re just grateful to be living and if wearing a mask and sunscreen keeps us healthy, that’s an easy trade. Every day is a gift!
Do you live in a high sun area? Right now, in northern Wisconsin, the smoke from those devastating fires in Canada is blotting out the sun and it’s really difficult to breathe when outside. The N-95 mask has really helped on my daily walks.