1. < Kidney & Bladder

Understanding GFR and kidney disease: What's normal?

Posted by bugsowen @bugsowen, Sep 23, 2020

Just officially diagnosed ckd stage 3 June this year but doc has been monitoring. December 2018 GFR 56. June 2020 GFR 48. Was not given any thing other than water daily excersise and reduce alcohol. After research on ckd it looks very serious. Called doc back few days after appt for more info. Came with plant based low protein diet. Ordered some cookbooks and cobbled together what I called kidney diet. Follow up blood work now showed GFR 60!!! But monocytes and mch are high. Next appt is 10/2/20. Is this increase in GFR normal and will it last? BTW I am 66 will be 67 in c
December

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wr61 | @wr61 | Jun 26, 2023
In reply to @psue4 "Is Torsemide and Farxiga, good or bad in your treatment. My daughter has been diagnosed with..." + (show)
@psue4

Is Torsemide and Farxiga, good or bad in your treatment. My daughter has been diagnosed with WM and has been on 3 Chemo meds plus torsemide. She is taking a month off chemo now right now.
Thanks for your answer.

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Make sure most of all to stay well hydrated. Both drugs have a diuretic effect.

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flow | @flow | Jun 26, 2023
In reply to @fromthehill "I am 84 and was told that I had CKD stage 3 after a total hysterectomie..." + (show)
@fromthehill

I am 84 and was told that I had CKD stage 3 after a total hysterectomie in 2020. And that it was not going to get better...But this was very encouraging to read THANKYOU!...I had a GFR of 33 and was told there wasn't really any need to change my diet and go on as usual. It seemed so stupid not to adjust you diet to accommodate lessen kidney function and being borderline prediabetic (A1C 6.4) My GP said that it all had to do with getting old. ..I was very angry and refused the offer of Metformin and said I wanted to try and control my numbers first with diet. She said she would be very surprised if I did. I put together a "crossover diet" by combining diabetic/kidney portion diet....and getting my blood tested every 3 mos. For A1C and GFR and my last numbers were A1C 6.0 and GFR 44! Which is better. Now my GP is saying she is only going to test A1C every six month and that I only need a check up every one to two years! This is very worrying to me because I need to know how I am doing if I am to keep on track. I know I am getting old but can't help wonder if this isn't a case of "your old and boring and going to die anyways so why bother" So does anyone out there know of how I might be able to do these tests myself or are there other simple tests that would help me keep track of how I am doing. I am getting ready for exhibitions and do my work and this situation is distracting and depressing...I cannot go silently into the night. Am so pissed off! Thank you for listening to my long rant.

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Hi there….I understand your emotions, with your situation. I am 65 and have experienced the same apathy from some MD’s. I have recently become aware that some labs are offering tests directly to the public… all kinds of lab tests. I have also recently learned from wise people on this site that there can be quite a lot of variation in results from different labs. So maybe you could contact your usual lab and ask if they offer tests without an RX from a Dr. The labs I’ve found online, include a result consultation with an MD they have some sort of service partnership with. Keep advocating for yourself and try not to let the frustration/anger of it get to you too bad. 👍🏼💛

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fromthehill | @fromthehill | Jun 27, 2023

Thank you very much for the encouragement...great idea about contacting the lab....Take care and be well.

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eva1930 | @eva1930 | Jun 27, 2023

I a m 88 my Gfr is 58 this went up from 49. I have found that exercise, walking and watch your diet is what has helped me over the past few years,

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