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Kidney Transplant for MM patients

Transplants | Last Active: Jul 10, 2023 | Replies (6)

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@gingerw

@druchefavour Welcome to Mayo Clinic Connect.

I am not sure where you live, or what your transplant center is. Contact them directly and ask them how this changes things. Were you give a diagnosis of multiple myeloma, or the precursor of MGUS [monoclonal gammopathy of unspecified significance]. Has your hematologist referred you to an oncologist, yet?

I am an ESRD patient on dialysis, also. I am an active multiple myeloma patient, and was informed I am not eligible to get a transplant due to the blood cancer. Other kidney recipient patients I know have had to be cancer free for 5 years before their transplant. But a blood cancer falls into a different category, from what I have been told,

I will be curious to hear what information you find out. Will you let me know, please?
Ginger

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Replies to "@druchefavour Welcome to Mayo Clinic Connect. I am not sure where you live, or what your..."

My wife is a myeloma patient. She was on dialysis for 4 years because of a myeloma induced kidney failure. She got a kidney transplant. She was in deep remission at the time, which was confirmed a year earlier (not 5 years), but she was not cancer free since myeloma is incurable. I did extensive research into the subject. There are people who have received a kidney transplant with a more active myeloma than hers. It has been more than a year, the kidney is working fine, no issues from myeloma. This is a difficult subject. 10-15 years ago myeloma was a complete counter-indication for a kidney transplant. Not anymore, but many doctors do not know this. It will take a lot of convincing (it did from us) or looking for a different specialist.

Thanks Ginger! I appreciate the information. I will keep you posted if I get any information