1. < Breast Cancer

Radiation and Invasive Lobular Cancer

Posted by kks @kks, Oct 3, 2022

I am reading a lot about Endocrine Therapy and Chemo options with ILC, but not much on Radiation. Does anyone have experience on effectiveness of this? Most of the research appears to be on ductal.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

tessadaly | @tessadaly | Jun 25, 2023
In reply to @colleenyoung "Welcome, @kks. there are a few members here living with invasive lobular cancer who have had..." + (show)
@colleenyoung

Welcome, @kks. there are a few members here living with invasive lobular cancer who have had or are considering radiation treatments, like @delormv @wendles @kszilvia @ilcpfightee @pharmmom4 @jackiestack. They may be able to share what went into their treatment decision making and their experiences with radiation.

You might also be interested in this related discussion with the ILC-ers hang out:
- Lobular Breast Cancer: Let's share and support each other https://connect.mayoclinic.org/discussion/lobular-breast-cancer/

KKS, is radiation being discussed as a treatment option for you?

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Yes.

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2 replies
tessadaly | @tessadaly | Jun 25, 2023
In reply to @selwena "Hi it's Selwena just checking in. Have you had your surgery yet? How are you feeling?..." + (show)
@selwena

Hi it's Selwena just checking in. Have you had your surgery yet? How are you feeling? Just wanted to check in on you. I was thinking about you. Hugs and love.

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Yes I have had a mastecomy.

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1 reply
dyevooshka | @dyevooshka | Jun 25, 2023
In reply to @tessadaly "Yes." + (show)
@tessadaly

Yes.

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I have ILC, had surgery (lumpectomy) Feb 2023, 16 treatments of radiation ending May 2023, now on Anastrozole (OK after starting last month!) for 5 years. Will have MRI 6 months from radiation in Nov 2023. All good so far.

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dolphina3 | @dolphina3 | Jun 26, 2023

I had invasive Lobular TNBC chose to do masectomy, large tumor and wanted to get rid of any possible microscopic cells in breast. I had 5 weeks of radiation this was because of tumor size.
Thinking of you and if you arent sure of something ask alot of questions.

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Sue Ellen Murrey | @semurrey | Jun 26, 2023

Hi! I had ILC lumpectomy (1.8cm, no nodes) in late Nov 2022 and finished 19 treatments of radiation at Dana Farber in January. I did have a consult at MGH in regards to proton beam and they didn't think proton beam would be the most effective so I went the traditional radiation with boost. I am on Letrozole and will follow up with diagnostic mammo one year from last mammo that did catch my ILC as my oncologist said change in tissue needs a year to "settle down" to be an effective mammo. With very dense breasts I would like to add MRI.
Good luck xoxo

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tessadaly | @tessadaly | Jun 26, 2023
In reply to @tessadaly "Yes I have had a mastecomy." + (show)
@tessadaly

Yes I have had a mastecomy.

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I feel bad and don't know if I want to have any further treatment or not. I am almost 71 and I don't want to give any more time to cancer.

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1 reply
dolphina3 | @dolphina3 | Jun 27, 2023
In reply to @tessadaly "I feel bad and don't know if I want to have any further treatment or not...." + (show)
@tessadaly

I feel bad and don't know if I want to have any further treatment or not. I am almost 71 and I don't want to give any more time to cancer.

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Hi this whole journey is as one fellow patient said to me, be ready for the circus.
I don't know your journey at 71 . I was 68 and am 70 now and if anything comes back I will go thru it all again.
Thinking of you and sending a hug.

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1 reply
tessadaly | @tessadaly | Jun 27, 2023
In reply to @tessadaly "Yes." + (show)
@tessadaly

Yes.

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I am putting my trust in my surgeon that he removed the cancer and not having any further treatment. I am 71 and just want to get on with my life. I will however have some acupuncture.

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timely | @timely | Jun 27, 2023

tessadaly :

I am older than you and have had radiation and AI.

I will do whatever I can to try to remain healthy as long as I can.

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