Progressive symptoms, need advice please.

Posted by tennis123 @tennis123, Jun 10, 2023

Hi, I am a young adult in my 20s. I have had symptoms that seem to be progressing, and I am very scared. For the past year I have had worsening heat intolerance with hyperhydrosis on my face. My doctor initially thought it was stress. I accepted that possibility initially but it was happening at times when I was completely calm at home. I then started developing waxing and waning pain in my back, the worst in my lumbar spine with paresthesias over the area and tingling in my pelvis. I began to have the sensation that I was urinating on myself when I wasn't and I've been experiencing urinary urgency. Since these symptoms began, I have had an abdominal CT w/ contrast that was negative. I have also had an MRI of my brain and entire spine without contrast which was pretty much completely normal other than a small disk bulge in my cervical spine. My last MRI was of the lumbar spine about 2 months ago. After I had the imaging, the symptoms got much, much worse. I began having spasms in my pelvis and perineal area and was unable to have a bowel movement for about a week and my back hurt so badly I couldn't sit down. I had an episode where I became extremely, extremely fatigued for about 2 weeks recently and felt like I could barely lift my head. When walking my right foot would drag on the ground every once in a while. When I sit down now, I get vibrating in my lower back and down both legs and all my leg muscles are fasiculating and spasming and I still have all the symptoms previously mentioned such as extreme hyperhydrosis and back pain. When I get nervous, my symptoms do worsen and my legs shake and almost give out. I have wanted to go to the emergency room but I didn't because I didn't want the staff to be condescending about it. I've had lots of lab tests, such as a basic autoimmune workup which was negative and I've had acute phase reactants tested multiple times since it started about a year ago, which are always normal. I have an appointment with a neurologist coming up but it's taken so long to get in and everything has been progressing. Does anyone have any advice? I'm so scared because everything has been normal and I have no answers.

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i got a spinal brace my yoga teacher noticed it due to not holding the correct posture plus probably because i worked very hard in my younger day on heavy physical lifting etc, but know i got the brace i should have had the XL to fit over my coat

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