How do u deal with the depression?

Posted by stauggroomer35 @stauggroomer35, Jun 19, 2023

How does everyone deal with the depression from having multiple autoimmune diseases?

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@pheebz

I feel so alone. I push people away and don't mean to. I have isolated myself to the point that there is no chance for happiness. I just want it all to stop. The pain the noise the overwhelming sadness. I have no hope left and I'm scared. I will never be ok again.

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I know how u feel. I have been doing the same even with my husband. I have been dealing with depression and suicidal thoughts since I was a child. U just have to keep pushing through it. U and only u can snap yourself back. It sucks i know. I think counseling and writing in a journal does help some. I’ve been trying to find other ways to but work 12 hour days. It’s hard to do any exercising since my knee doesn’t want to work. I’ve tried physical therapy, pain meds, u name it. The pain is horrible along with my raynauds and fibromyalgia. We are here for u.

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I belong to a couple of men's groups and have a friend from church who has MS. Once a week or so I volunteer time working on our church's web prayer portal. Reading and posting encouraging scriptures always makes me more aware of those around me in the community that are dealing with chromic illness. https://www.whatisgrace.org/prayer-wall

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I don't. Just try to keep busy, exercise and hope. No meds work on me, never did, some were weird and had bad side effects so I do not take meds. Try to work through it the best I can.

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Pain is so tiring and slows you down. I move as much as possible.....I try and eat healthy.....I soak in Epsom salt....I use heatpacks, muscle relaxant, get an occasional massage & use Voltaren 1% gel... I have close friends that I can share my heart with....I pray and read my Bible....I write cards to others....I laugh a lot.....I journal...I like to do things anonymously for others.....I find that being "others minded" keeps my mind of my pain and fatigue....I love to listen to good music, it's relaxing... I rest when I need too or I will have nothing to give my family or others for several days....I have learned to say "No"....I try to avoid as much stress as possible and negativity (the news!).... Bless you and praying for you.....

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@pheebz I have felt as down as you describe.I was an oncology nurse and the work was so hard. The patients were wonderful, but needy. So I decided that I needed to volunteer. I helped the homeless at an overflow shelter every Monday night. About twice a month I cooked dinner for about 100 homeless persons. Their problems were so much greater than mine but they were wonderful people! It helped reduce my stress.
Volunteering is a great healer! Can you think about doing it?

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Hi there!
I’ve been dealing w/ depression, anxiety, and chronic pain, just to name a few, my entire life. I finally found the right psych provider who prescribes the meds I need to function and a therapist that “gets me”
and who I have a lot in common with.
It takes a lot of patience and perseverance to find the right people to help you, but when you do, it helps a lot. Don’t give up.
I try to busy my mind. If I’m not feeling well, I’ll curl up w: my laptop, phone, TV, magazines…….whatever keeps me occupied. If I feel ok physically, I go outside; especially if the weather’s nice. Sitting in the sun is an antidepressant for me. Sometimes calling a friend or family member helps, if they’re positive people. . It took me decades to learned to drop toxic people from your life. (Even if they’re family) People who bring you down, who might use you, or are two faced, negative are like poison. You don’t need then.
Do you have any pets? I couldn’t live without at least one. Well, that’s what I can offer to beat depression. It’s a terrible disease to deal with. Find things you like to do; be a little selfish and take time out for yourself!
Best of luck!

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I do have cats. I lost my dog in January too old age. I work as a dog groomer so i get to love on other dogs to all day. It’s exhausting work and more physical then what most people think.
I do talk to some people and like u got rid of negative and toxic types. I still distance myself. Finding a therapist in my town has been very difficult. Still haven’t found one. I’m on meds but after awhile they make me irritable. I stay pretty busy since I work 12 hours a day Monday- Friday and some Saturdays. I love being outside but the outside doesn’t like me. The sun and heat with my raynauds and sjogrens do not get along. Even inside I have to be careful of temperatures. At any moment I could have hot flashes and feel light headed.
It’s so depressing not to be able to do a lot of the things u use to do or we’re capable at doing. I get tired of people telling me welcome to getting older. Even thou they know I have autoimmune diseases and lupus they don’t see it as a problem. I wish people could be in your shoes for at least a day on ur worst day so they could understand.
I will not give up on finding something. Thank you for listening.

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I deal with several autoimmune conditions. Systemic lupus [diagnosed in 1988!], fibromyalgia, gout, and an ultra-rare kidney disease that has led to dialysis.

Being under the care of a great therapist has helped me. Beyond that, doing journaling has been helpful to get thoughts off the hamster wheel of my mind and onto paper. Being creative in some way can also steer me to a more positive frame of mind [gardening, crochet, quilting, artwork]. And reaching out to help others as I can. It can be as simple as helping someone reach something on a shelf in the store. It makes me feel good, wanted, nevermind how it helped someone else!

I hope these things will help you. Give them a try, if you haven't. If you have but have not been satisfied with the outcome, try again.
Ginger

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@stauggroomer35

I do have cats. I lost my dog in January too old age. I work as a dog groomer so i get to love on other dogs to all day. It’s exhausting work and more physical then what most people think.
I do talk to some people and like u got rid of negative and toxic types. I still distance myself. Finding a therapist in my town has been very difficult. Still haven’t found one. I’m on meds but after awhile they make me irritable. I stay pretty busy since I work 12 hours a day Monday- Friday and some Saturdays. I love being outside but the outside doesn’t like me. The sun and heat with my raynauds and sjogrens do not get along. Even inside I have to be careful of temperatures. At any moment I could have hot flashes and feel light headed.
It’s so depressing not to be able to do a lot of the things u use to do or we’re capable at doing. I get tired of people telling me welcome to getting older. Even thou they know I have autoimmune diseases and lupus they don’t see it as a problem. I wish people could be in your shoes for at least a day on ur worst day so they could understand.
I will not give up on finding something. Thank you for listening.

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@stauggroomer35 Boy, did you hit the nail on the head! Yes, if people could only walk in our shoes for a day. I look so lost at times and bewildered and it takes me a few minutes to get my bearings. My neighborhood friends are used to it now, but I always wonder. I’ve been very open about having depression, and it’s not fun.
I know what it’s like to walk in your shoes and it’s not easy.
Do you think you could try something new today? Something to get yourself out of the house?

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Went for a car ride with hubby. Went shopping and walked til it was starting to get uncomfortable on my knee. It was nice being out. Don’t get much chance to spend with hubby since we work different hours. I hope your day is going well. Thank u for being there

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