Hi @tennis123, I see that you haven't found any answers from the first discussion you started in the neuropathy group. Unfortunately like most members on Connect, we are not doctors and cannot diagnose conditions although we can share similar experiences. You have a lot going on for being so young and I know that has to be frustrating not being able to get answers. I do agree with you that going to the ER probably isn't going to help with a diagnosis, just my non medical opinion. If it were me, I would try to set up an appointment at a teaching hospital or major health facility like Mayo Clinic that uses multidisciplinary teamwork, physician-led governance, and patient-centered health care.

Is it an option for you to seek help at a teaching hospital or major health facility?

Have you been tested for fibromyalgia? Ask you Dr. about Gabapentin, as well.

I am so sorry you are suffering like this. Have you been tested for MS?

I have experienced some of these symptoms. Tingling, facial snd neck spasms snd vibrating when sit or lie down. The fact that it is intermittent or waxing and waning is a real clue.
Stress. Pure stress.
Ask yourself sone questions about your life. Are you living your best life? Are you living according to your belief system with expectations met? Do you have positive people around you.
If not, instigate some lifestyle changes.
Eat healthy
Exercise (yes) walking, swimming, gym
Make some changes where needed - job, partner, family,
Take charge of your life.
Laugh at funny movies every day
Don’t take others stuff on board.
All your symptoms can be related to stress.
Give it a good go
Ready steady GO

@tennis123, you will notice I have moved your post into your other post on this topic to keep all of your updates together for members to follow along. You can find your post here:
- Strange symptoms rapidly worsening: https://connect.mayoclinic.org/discussion/lower-back-pain-vibrating-legs-and-body/

Nearly same symptoms as you describe started 5 months ago and experiencing most daily since. 2 trips to ER were huge waste$. I’m 64 and it’s frightening how fast they’ve come on and without “remission”. Have had 4 mri I insisted PCP order. While I wait for appointment with neurologist next month, PCP says MRIs all normal. Very obvious to me that something is very wrong. Also muscle tone gone flaccid real fast, even in cheeks of my face.
PCP put me on gabepentin. Does nothing but help me fall asleep for a few hours at night, while body vibrates with electri current 24/7.
I hope you find some answers soon.

You say you haven’t received a diagnosis yet you’ve been experiencing this for sometime. Have you seen a medical professional and have you had any studies done to help identify your problem? As John Bishop stated we’re jointly all sufferers of one kind or another and we confuse you with too much anecdotal info of our own issues.

@tennis123 I am a spine surgery patient and had a tough time getting a correct diagnosis. I had cervical stenosis causing spinal cord compression in my neck. That can cause pain and jumping muscles anywhere in the body. Have you had an MRI to get an image of the entire spine? That is important to find where a problem is and to rule out others. Spine problems are tricky and can confuse surgeons. 5 surgeons missed my diagnosis and only one got it right. I had decompression surgery that fixed the problem.

I did, with a b12 deficiency. Get it checked!

@tennis123 Hello, I know this post is almost 3 years old, but I am having some of the exact same symptoms. Did you ever get any answers about the vibrating in your lower body while sitting? I have the vibrations you describe, and I have terrible hot flashes (I am perimenopausal though), terrible neck and lower back pain - the muscles are unbelievably tight and knotted, so much so that massage only helps for about a day or two and they are right back to being tight. My muscles shake, and the biggest issue is the lower body vibrating that I have while sitting, mostly in my left leg. The pain goes from my low back down into my hip and down my leg all the way to my left foot. The vibrating/buzzing/pulsating that happens drives me crazy. I have had 5 brain MRIs and two neck MRIs with no serious issues being diagnosed. They say I have stenosis and bulging discs, and I also have occipital neuralgia. I am about to get an MRI of my low back and left hip to see what could be going on there. I have also been waking up at night with heart racing certain I am having a heart attack, so I see cardiology tomorrow. I was diagnosed with POTs in 2023, so not sure if it is a POTs flare up or some new issue that has decided to appear. Every time I have been to the ER for any weird symptoms they tell me they can't find anything and send me home with papers saying I have an anxiety disorder. Well of course I'm anxious, anyone would be if they had this many crazy symptoms every day. Last ER visit $32k was billed to my insurance company, and I got absolutely no answers except I have anxiety 🙁