Connect
← Return to Strange symptoms rapidly worsening -back pain, vibrating legs and body
Discussion
Strange symptoms rapidly worsening -back pain, vibrating legs and body
Brain & Nervous System | Last Active: Sep 20, 2023 | Replies (33)Comment receiving replies
Hi,
I've made a post in another group but I am convinced that I may have a form of neuropathy, so I thought I would post here and see if anyone has any advice or has experienced similar symptoms.
I am in my late 20s and have been having strange symptoms for a few years that have been having a waxing and waning kind of pattern. The symptoms include tingling, whole body fasciculations, muscle tightness and spasms. Most recently for the past few months, I have been having terrible hot flashes with excessive sweating on the central areas of my face, terrible neck and back pain (tightness with sharp stabbing, burning areas of pains in random areas of my spine), and worse tingling/fasciculations/spasms. My muscles have started shaking when doing things such as if I squat down or lean my head on my arm, when this sort of thing never happened previously. When I sit down my entire lower body feels like it's vibrating. I haven't received a diagnosis, and I don't know what to do at the point as everything seems to be worsening and I'm at my wits end. I have had all sorts of testing and everything has come back normal. It is worsening so fast that I'm considering going to the ER but I know it would probably be a massive money sink without much benefit. Has anyone experienced anything similar or have any advice?
Replies to "Hi, I've made a post in another group but I am convinced that I may have..."
Have you been tested for fibromyalgia? Ask you Dr. about Gabapentin, as well.
I am so sorry you are suffering like this. Have you been tested for MS?
I have experienced some of these symptoms. Tingling, facial snd neck spasms snd vibrating when sit or lie down. The fact that it is intermittent or waxing and waning is a real clue.
Stress. Pure stress.
Ask yourself sone questions about your life. Are you living your best life? Are you living according to your belief system with expectations met? Do you have positive people around you.
If not, instigate some lifestyle changes.
Eat healthy
Exercise (yes) walking, swimming, gym
Make some changes where needed - job, partner, family,
Take charge of your life.
Laugh at funny movies every day
Don’t take others stuff on board.
All your symptoms can be related to stress.
Give it a good go
Ready steady GO
@tennis123, you will notice I have moved your post into your other post on this topic to keep all of your updates together for members to follow along. You can find your post here:
- Strange symptoms rapidly worsening: https://connect.mayoclinic.org/discussion/lower-back-pain-vibrating-legs-and-body/
Nearly same symptoms as you describe started 5 months ago and experiencing most daily since. 2 trips to ER were huge waste$. I’m 64 and it’s frightening how fast they’ve come on and without “remission”. Have had 4 mri I insisted PCP order. While I wait for appointment with neurologist next month, PCP says MRIs all normal. Very obvious to me that something is very wrong. Also muscle tone gone flaccid real fast, even in cheeks of my face.
PCP put me on gabepentin. Does nothing but help me fall asleep for a few hours at night, while body vibrates with electri current 24/7.
I hope you find some answers soon.
You say you haven’t received a diagnosis yet you’ve been experiencing this for sometime. Have you seen a medical professional and have you had any studies done to help identify your problem? As John Bishop stated we’re jointly all sufferers of one kind or another and we confuse you with too much anecdotal info of our own issues.
@tennis123 I am a spine surgery patient and had a tough time getting a correct diagnosis. I had cervical stenosis causing spinal cord compression in my neck. That can cause pain and jumping muscles anywhere in the body. Have you had an MRI to get an image of the entire spine? That is important to find where a problem is and to rule out others. Spine problems are tricky and can confuse surgeons. 5 surgeons missed my diagnosis and only one got it right. I had decompression surgery that fixed the problem.
Connect
Hi @tennis123, I see that you haven't found any answers from the first discussion you started in the neuropathy group. Unfortunately like most members on Connect, we are not doctors and cannot diagnose conditions although we can share similar experiences. You have a lot going on for being so young and I know that has to be frustrating not being able to get answers. I do agree with you that going to the ER probably isn't going to help with a diagnosis, just my non medical opinion. If it were me, I would try to set up an appointment at a teaching hospital or major health facility like Mayo Clinic that uses multidisciplinary teamwork, physician-led governance, and patient-centered health care.
Is it an option for you to seek help at a teaching hospital or major health facility?