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I am 44 and just had double mastectomy in April. I was told going into surgery my tumor was over 7 cm ( cm not mm so considered large) but after pathology it came back only 3.3 cm. I too wondered how the size was off as I had MRI. I immediately feared I could have had a lumptecomny vs mastectomy ( although surgeon says still would have recommended mastectomy.) But after all the research and hearing peoples stories ( as much as I have hated all this) I think the double mastectomy was a good decision to help prevent future occurrence. Otherwise w my age and not knowing where it came from ( BRCA/ gene test negative ) I think we have prevented alot of future fear, stress, and testing.
Even w the double mastectomy I still fear cancer will come back ( maybe in another form), but I will know I did everything I could to prevent it.
Good luck w your decision!
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@jgallagher04921
With the actual size of the tumor I think you still would be recommended a mastectomy.
I was also BRCA negative with zero history of any cancer in my family.
I recently had testing for other mutations causing BC and was negative. My daughter tested positive for mutation CHEK2 that increases the risk of breast cancer - both men and women- and colon cancer.
She is now being closely monitored- no cancer yet.
Of course she has increased risk from me too.
I also have been anxious about cancer returning- finally relaxed a bit after 31 years.