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Immune Suppression Meds

Transplants | Last Active: Jul 7, 2023 | Replies (44)

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@hello1234

You are the auntie in the family that everyone loves @loribmt ❤ I definitely know that's true with your Mayo Connect transplant family! I am so grateful for your excellent advice. (I rely on it on a regular basis)

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Replies to "You are the auntie in the family that everyone loves @loribmt ❤ I definitely know that's..."

@hello1234
Happy Sunday! That seems like a very harsh response from that nurse! Did they tell you at any time that they would no longer follow up on your labs and make med adjustments? If they had not, I would have said so and asked if they are no longer following up yearly. You have struggled so much wit BK virus, etc. you need to know this. At Mayo Rochester where I received my transplant, they continue to follow me for post transplant care. I am very thankful for them. I have heard on here Mayo AZ also stops following at 3 years. Have you had your three year appointments? Are they scheduled yet? Maybe ask at the appointments if they are. If not then try sending the Transplant Surgeon a message and hopefully another nurse will respond. You are such a kind person and do not deserve to be talked to like that even if they are busy. I hope your local nephrologist can cover this for you if you can’t get a response. Take care!