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MCTD, Fibromyalgia, Reynauds

Autoimmune Diseases | Last Active: Sep 15, 2023 | Replies (78)

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@becsbuddy

@yellowdoggirl. I see that you take gabapentin. How long did it take to adjust to the medicine. My neurologist started me on gabapentin 100mg for restless leg syndrome. The headaches are terrible! And she wants me to slowly taper up to 300mg twice a day! I can’t even imagine! Did you have headaches or anything else?

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Replies to "@yellowdoggirl. I see that you take gabapentin. How long did it take to adjust to the..."

I took gabapentin for almost a year. After all the Grover’s Disease symptoms started to decrease, I tapered off. 300-200-100 & then only a couple of times to sleep when the itching started again.
Off all the way now & no need for it either.

I saw your comment on gabapentin. I tried this for Trigeminal Neuralgia, with no success, but no side affects. I am now on Pregabolin 50 mg and most of my pain is gone. I was on as much as 200 mg a day, but I was constantly asleep. When I begin to have pain in the jaw, I use BABY Teething Medicine. Rub it on the gums,, and everything is much better.
Gina5009

@becsbuddy and @gina5009 and @griffin1120 ,
Good morning!
I'm sorry it took so long to respond. I got a pacemaker May 12 and the stress woke up the toe nerve pain!
At first, gabapentin made me very "stupid", forgetful! Then the pain was excruciating all day, I titrated up to 1900 mg over the day as fast as possible. That was 2016. Pain was ok for 3 years until big stress, cardiologist told me this happens.
Took weeks to adjust to gabapentin.
Be patient, if possible, and I hope you feel better!

@becsbuddy ,
I was given only tramadol for the toe this time - didn't work! Old opiates did, but I don't like to play with them.
I tried 2.5-5 mg medical THC (also "expired") from a dispensary (had a medical marijuana card). Also upped the gabapentin dose.
It worked!
Still dopey in the AM though.