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MCTD, Fibromyalgia, Reynauds

Autoimmune Diseases | Last Active: Sep 15, 2023 | Replies (78)

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@school2health

Hi. My diagnosis, MCTD, FIBROMYALGIA. I'm sorry that I don't have answers. But I'm thankful to have come across this group and will be following. My diagnosis came about 3 and a half years ago, I'm 60. I also have had symptom for years. I've been on Duloxetine for about 2 years now. At various times throughout that time, I tried to wean myself off for various reasons. I've had such a hard time with it, but I'm determined. I haven't yet told my doctor that I cold turkey stop taking it two weeks ago. I would like to know how others dealt with the side affects of this drug and if there is an alternate drug with less side affects. I know that it's not recommended to abruptly stop the treatment but the side affects have gotten unbearable. On a positive note, the wrenching low back pain has subsided since stopping the medication. If I can find relief for the nausea and brain zaps, I'll be happy.

God Bless
Linda

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Replies to "Hi. My diagnosis, MCTD, FIBROMYALGIA. I'm sorry that I don't have answers. But I'm thankful to..."

@school2health. Hello and welcome to Mayo Clinic Connect! Everyone here shares their health journeys and what works for them and what doesn’t. We’re glad to have you join us! What specifically. Didn’t you like about the Duloxetine? What kinda of side effects did you have?

Never do cold Turkey on Duloxetine, very dangerous, people have ended up with seizures and suicide attempts. Took me almost a year to get off, by opening the capsules and taking out 5 beads at a time, . I had the same side effects as you, brain zaps and fog, jerking movements.
Doctors just don’t understand this medication, telling you it’s safe, until I told mine to read the monograph. She was actually surprised to see what it contained.
I wish you luck, just go very slow