Welcome to Connect! It’s so comforting to find someone who feels the same way, doesn’t it? Not having doctors take you seriously is so frustrating when you know something isn’t right. I was just going to echo @cheft and suggest having a second opinion, preferably at a larger teaching hospital like Mayo.
If you’d like to start the application process for a visit to one of Mayo’s 3 campuses, here’s the link to their home page. http://mayocl.in/1mtmR63
The coordinator who takes your call will take your information and guide you from there.

The doctors at Mayo work collaboratively between departments to get you the best treatment with hematologists, cardiologists, etc.. They take patient care very seriously.

You really need someone who specializes in blood disorders and it sounds like your current hematologist might not be up to the calling. Are there any other hematologist/oncologist you see can locally or a larger, teaching clinic nearby?