I am so glad to find and join this group. I have struggled with doctors not listening or caring about what is going on with me. I was originally diagnosed with Thalassemia in 2018 and after having a heart attack on 2/22/22 was sent back to the hematologist who originally diagnosed me. At an appointment in May 23, I asked for a summary of my appointment and it was there I discovered that I had been diagnosed with MGUS. When I asked my dr about it he said it was nothing to worry about as he said with the thalassemia. I have had trouble with Iron deficient anemia and have had 4 intervenous treatments for that in the past. The last one I had was in May this year and I am still fatigued and lethargic. I recently began to struggle with pain in my left hip. It started in May and has increased to the point where I had to leave a pilates class Friday. The pain is steady and upon standing my left leg and foot fall asleep and get tingly. I have had trouble with tingling in my hands and feet but was told there was nothing anyone could do. The drs never take me seriously and haven't provided any information about MGUS. I have discovered thru my research, which only consists of internet searches which scare the sh*& out of me, that my hip pain is a sign of progression. I have no idea what to do. I was even told by one cardiologist that I have Amyloidosis and then was told that wasn't it. HELP.....:) I have found some peace by searching through these post to discover we all have similar issues.