← Return to Diagnosed with POT1 Gene; CLL/SLL ; Non specific thickening right eye

Discussion

Diagnosed with POT1 Gene; CLL/SLL ; Non specific thickening right eye

Eye Conditions | Last Active: Jun 24, 2023 | Replies (2)
Comment receiving replies
@loribmt

Welcome to Mayo Connect, @tatayababa
I’m not finding any information from other discussions in the forum where members with CLL/Lymphoma have had thickening in their eyes. Is this in the eye itself or in the layer covering your eye?

While we wait for other members to respond we do have a very active CLL/Lymphoma support group. With your recently diagnosed CLL and lymphoma I’m sure you have questions and concerns. Here are some links for you to check out with members @justinesmith @normahorn @kegraves @carl50 and many others who have CLL personally or have family members involved:
~Just diagnosed, what can be done? https://connect.mayoclinic.org/discussion/cll-leukemia/

Were you diagnosed with a specific type of lymphoma?

Jump to this post

Replies to "Welcome to Mayo Connect, @tatayababa I’m not finding any information from other discussions in the forum..."
tatayababa | @tatayababa | Jun 24, 2023

Hi Lori; SSL; I was diagnosed with POT 1 gene i have yearly checks on eyes; cardiac etc; the thickening is in the eye itself; im heading back for another test Sept 25 she if there is an increase of thickening; if it has gotten thicker; i will have to have a biopsy.

VIEW AND REPLY