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← Return to Immune Suppression Meds
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Hi @loribmt 😊
It is so great to hear from you! I hope you are doing well. My monthly labs are requested by my local nephrologist.
But whenever there was a concern about my Tacrolimis level, I would contact Mayo for the adjustment.
I was under the impression that the transplant center was "in charge" of the immune suppression meds adjustments.
When I contacted my transplant coordinator yesterday she made it very clear, "don't call here, call your local nephrologist for any adjustment".
I just want to make sure that's the actual policy or are other transplant coordinators helping their patients with the adjustments of their immune suppression meds after two years post kidney transplant?
Replies to "Hi @loribmt 😊 It is so great to hear from you! I hope you are doing..."
If you are no longer seeing your transplant team on a regular basis and your appointments are always with your nephrologist than he/she should be taking care of your meds. My nephrologist will check with the transplant team for advice on changing immuno drugs.
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Good morning! ☺️ That comment sounded pretty terse from your transplant coordinator. There certainly could have been a nicer way to state that instead of making you feel that you’re ‘ cut off’ from their care.
I didn’t have a solid organ transplant so maybe it’s a little different with a stem cell transplant. I was told by my team several times that “We’re married for life, until death do you part…and let’s hope it’s a long and healthy marriage!” 😅
I’m no longer on tacro but routine blood results are still sent to Mayo 4 years later for my doctor’s review. He still calls the shots on my meds. (I’m not currently taking anything except a new statin ordered by my transplant doctor, but all meds get approval first through my team)
Hopefully other transplant patients like @rosemarya will have a solid answer for you. Do you make annual followup trips back to your transplant clinic?