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Immune Suppression Meds

Transplants | Last Active: Jul 7, 2023 | Replies (44)
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@loribmt

Hi @hello1234. When your trough levels are reported, who gets that info? My local lab would take the blood but it was shipped to Mayo for processing and my team always made the decision on adjustment. They are and remain the ‘people behind the dials’ in anything transplant related.
Who has made changes in your tacro in the past?

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Replies to "Hi @hello1234. When your trough levels are reported, who gets that info? My local lab would..."
hello1234 | @hello1234 | Jun 24, 2023

Hi @loribmt 😊
It is so great to hear from you! I hope you are doing well. My monthly labs are requested by my local nephrologist.
But whenever there was a concern about my Tacrolimis level, I would contact Mayo for the adjustment.
I was under the impression that the transplant center was "in charge" of the immune suppression meds adjustments.
When I contacted my transplant coordinator yesterday she made it very clear, "don't call here, call your local nephrologist for any adjustment".
I just want to make sure that's the actual policy or are other transplant coordinators helping their patients with the adjustments of their immune suppression meds after two years post kidney transplant?

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