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Anyone else have Symptomatic MGUS?
Blood Cancers & Disorders | Last Active: Nov 28, 2023 | Replies (73)Comment receiving replies
Dear mgusPixi25,
I have heard a little bit about your health care system over there. Ours has issues as well. But this I know, while you cant’t change the fact you have MGUS, and maybe you can’t change where you live, you do have a great big crowd of folks who understand and will support your journey. As we already alluded to, you can eat healthy, exercise and don’t forget to have a good laugh once in a while. I can usually find a little humor every day. And remember sleep is so important to your healing. Treat yourself to a good nights sleep often.
There are organizations like HealthTree here and the Multiple Myeloma Foundation that maybe you could also sign up with on line. With the internet we have so much more access to latest developments and such.
Take care. Sleep well. 🙂
Replies to "Dear mgusPixi25, I have heard a little bit about your health care system over there. Ours..."
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Hi there Nancy1900, Yes unfortunately the systems that are designed to help aren't as infallible as I'd like.. Are you in the States? I have some friends in the US and they have described how challenging it can be to get help, get medicine, and get tests. I am very pleased to hear you have access to a good level of care 🙂
That is an excellent point you've made regarding the community of people who understand; this is something I am also very thankful for indeed! 🙂
And good rest, as well as feeling happy, are integral to the function of the immune system..I was reading some research some months ago regarding how noradrenaline in particular impacts on plasma cells and monoclonal cell growth and multiplication (the 'flight' hormone).
Sleep is an interesting aspect of illness; I was also reading that in Stage 4 sleep, the immune system is highly active, and working to control other aspects of immune dysfunction like autoimmune diseases (Stage 4 is the deep sleep cycle, characterised predominantly by delta waves, if I remember rightly). Bone and other pain can disturb sleep enough to limit the cumulative time spent in deep sleep - another contributor to health outcomes related to immunity...could chronic pain and its impact on sleep also be a contributor to immune disease is the question I was left with after reading that particular piece of research 🙂
Thank you so much for sharing those additional resources; I really do appreciate it very much 🙂
I hope you have a great day tomorrow!