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I have been diagnosed and under treatment for MDS

Blood Cancers & Disorders | Last Active: Dec 18, 2023 | Replies (16)
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@colleenyoung

Hi @wboy1234, welcome to Connect.
Here is some information about Myelodysplastic syndromes http://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndromes/basics/definition/con-20027168

As the article states "Treatment for myelodysplastic syndromes usually focuses on reducing or preventing complications of the disease and its treatments. In certain cases, myelodysplastic syndromes are treated with a bone marrow transplant."

What treatment has your care team recommended?

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Replies to "Hi @wboy1234, welcome to Connect. Here is some information about Myelodysplastic syndromes http://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndromes/basics/definition/con-20027168 As the article..."
mjpm2406 | @mjpm2406 | May 20, 2023

Anyone diagnosed with MDS/MPN-RS-T? I’ve was diagnosed 5 years ago. There are only 7 patients at Memorial Sloan Kettering with this overlap disorder. Three of them are from Europe. I’m number 7. Stony Brook Medicine has no patients and the VA Hospital has none. I know this is an extremely rare blood cancer but there may be someone on this site who also has MDS/MPN-RS-T.

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